Resources
Helping you Navigate
Knowing Where to Look
Your child's healthcare can be a difficult road to navigate. Critically Loved wants to point you in a direction where you can receive the most help!
To find a local office and for more information, go to:
Social Security Apply for Disability – Child
Call to schedule an interview 1-800-772-1213
Louisville local office: 10503 Timberwood Cir, Louisville · (888) 280-5851
At the interview, if you qualify financially, you will need to provide:
- Information about your child’s medical condition(s)
- Dates of visits to doctors or hospitals, the patient account numbers for any doctors or hospitals, and contact information for each doctor
- Copies of any medical reports or information you have in your possession
Social Security will contact the doctors directly for additional information, you don’t need to have the doctors write letters. Just bring what you already have. Copies of your child’s Medical Summary and List of Doctors from their Medical Binder will be helpful for this. Take the Medical Binder into the interview in case they need to make copies of anything else. To learn more, visit: https://www.ssa.gov/pubs/EN-05-10026.pdf
If you would like the help of a lawyer to apply for Disability, you can contact Sam Schad at Schad & Schad Law Firm http://www.schadlaw.com/sam-schad/ 800-730-4555
Once your child reaches 18 years old, you can apply for Social Security Disability again if they didn’t qualify financially before. It will no longer be dependent on parent’s income even if they still live at home. If they qualify, they can receive Medicaid as well as disability income (about $700/month). Adults can apply themselves (or with someone’s help) online at: https://www.ssa.gov/disabilityssi/
*This information is subject to change and may not be up to date. Check with your local Social Security Office for accurate information.
Specialized Charities are the BEST resources for helping you navigate your child’s condition. They can guide you through applying for Medicaid, medical waivers available, recommendations on treatment plans, doctors in your area who specialize in your child’s condition and much more! Click the link below to find one near you
Dream Factory
Would having a dream granted be a good distraction for your child? The Dream Factory does just that for children with a chronic or critical illness! Click above to find a local chapter
Ronald McDonald House
Does your child have an upcoming treatment at a facility out of town? The Ronald McDonald House is an awesome resource to help families! Click above to find a location
Make a Wish Foundation
Granting wishes for children with life threatening illnesses. Click above to find a local chapter
Looking for some resources? Here are some suggestions
The purpose of this study is to help parents release anger about their child's condition, see beauty among the ashes and draw them closer to God.
This Bible Study can be purchased to:
- Do on your own
- Lead a Group Study at your local church
- Work through with your special needs support group
- Do with friends
- Gift to a special needs parent
Sales from this Bible Study help support Critically Loved!
Critically Loved and MOPS, International
Beyond Measure is a collaboration of nonprofit partners Critically Loved and MOPS, Int. designed for EXTRAordinary moms who are raising EXTRAordinary children!
In this 6 week study, Critically Loved’s Executive Director, TyiaLynn, shares her heart and gets real about her own struggles. This study will provide HOPE, IDENTITY and STRENGTH to travel a road much different than those without special needs children.
A copy can be downloaded for $5 each at MOPS, International
Critically Loved recommends this devotional for parents whose child has been recently diagnosed
Author Melanie Gomez, of Redefine Special, does a great job with honesty while pointing back to God’s Truth in this must have book. To learn more about Redefine Special, and the inspiration they provide Click Here to visit their website.
Sometimes, we get stuck in life’s ruts. Ever feel stuck? If so, you don’t have to remain there! Insight for Living Ministries can help you climb out . . . with Reframing Ministries.
If the name Reframing Ministries is unfamiliar to you, that’s okay, because it’s the brand new name for the Special Needs Department of Insight for Living Ministries. Here’s how it will help you even more than it has. Led by Colleen Swindoll Thompson, Reframing Ministries offers help, hope, and a good bit of humor to those enduring difficult situations in life. Our goal is to bridge the gap sometimes left between a person struggling in life and his or her local church.
Our passion goes beyond being an encouragement for those with special needs or their caregivers. Reframing Ministries seeks to help people suffering the sting of divorce, abuse, loss, or countless other unexpected events. Our interviews, blog posts, and personal correspondence are purposed that we might work together to connect, to feel alive, and to find meaning in life.
Check out this valuable resource!!
We are in this together
Much Love
Our mission
“Critically Loved exists to provide guidance and hope for families of chronically or critically ill children.”
“Love always protects, always trusts, always hopes, always perseveres.”
1 Corinthians 13:7