Perseverance
PERSEVERANCE. The hard work we do, after we are exhausted from all of the hard work we’ve already done. Many trips around the sun have been journeyed since hearing that definition. It became one i aspired to. A term i … Read More
PERSEVERANCE. The hard work we do, after we are exhausted from all of the hard work we’ve already done. Many trips around the sun have been journeyed since hearing that definition. It became one i aspired to. A term i … Read More
This courtyard is one i have visited frequently, for as many years as it has existed. Only six minutes separate me from this collection of sunshine as i venture from my daughter’s hospital room and is a space i soak … Read More
This phrase, spoken by a wise momma figure in my life, has permeated my mind the past 15 years. She really helped me to see and value friendships. How to support my friends, even when their struggle doesn’t hold any … Read More
B+ (be positive). It’s what flows through my child’s veins. Keeps her alive. Needs replenishing often. It’s “inspirational blood” as we call it, and her life is dependent on it. Not only the blood itself, but the motto with which … Read More
I have always loved staining wood. Giving new life to a piece on its way to a burn pile or bringing to life what has been waiting to be revealed; wood grains now visible and featured. Like individual fingerprints of … Read More
Never enough. Never enough time. Enough fun. Enough sleep. Enough laughter. Enough of me to go around; to accommodate the demands. Of my job. Of special needs. Of my other children. Of my spouse. Of my relationships. Of ministering to … Read More
“You need to be realistic about the limitations your child will have.” “Your child isn’t meeting milestones; you need to be prepared for the reality of his condition long term.” “There is no cure for your child’s condition. Your family … Read More
As I was working through my monthly Bible study on “Disruption” with The Christian Advantage, I was drawn to my under-reaction to this pandemic. The focus for this month’s study relates to our reaction to the disruptions in life; in … Read More
If you have been a Christian for any length of time, you have probably heard this verse: “Be still and know that I AM God.” Psalms 46:10 While It does seem like a nice verse to dwell on, if i … Read More
When plans to de-stress fall through, it can create more stress. Especially for us parents of critically and chronically ill children who live at a constant higher level of stress. However, if we start seizing small opportunities to lower our … Read More
For the moms of special needs children who always have it together, who never cry at inappropriate times or lose their patience, you can stop reading now, because this is not for you. This, however, is for all of the … Read More
Let’s be real. Life. Can be overwhelming. Some people seem to have more than their share of chaos thrown at them… and if i’m not careful, i can lose sight of the joy and peace that is available to me, … Read More
If you are the parent of a chronically or critically ill child, I’m sure you have heard the phrase, “I don’t know how you do it!” more times than you can count. Friends and family are often in awe how … Read More
Moms of chronically or critically ill children, do you ever feel like you are not seen or appreciated? At 3am visits to the ER, filling medication boxes at midnight, waiting 2 hours to see the Specialist with a crying child, … Read More
Ever wonder how Critically Loved was started? Listen to this radio interview from FM 94.7. Executive Director, TyiaLynn, and her daughter, Celia, share about the heartbeat of Critically Loved. To read more stories about Critically Loved, go to our In the News … Read More
Inspiration can come from many sources. Let us not forget that our own chronically or critically ill children can be one of the greatest sources of that inspiration! My daughter, Celia, had a request from a friend to help with … Read More
Being the Grandparent of a chronically or critically ill child can be a hard road to navigate. How do I help? How much help is too much? What if I don’t agree with the treatment plan for my grandchild? Critically … Read More
You do not go unnoticed.
School can quickly become overwhelming to children with a critical or chronic illness. With endless doctor and hospital visits, time spent away from school can result in mounding make-up work that seems impossible to catch up. Absences can also quickly … Read More
In this world of vastly diverse people, we all have different gifts, talents and interests that make tasks easy for some and extremely difficult for others. With a life threatening medical condition, my daughter, Celia. has more than her share … Read More
We all have a preconceived notion of what de-stressing looks like. I imagine a long bubble bath in the quiet. Yes, the quiet – the blissful sound that encompasses the noise in my head and drowns it out. I slip into the tub that … Read More
Are you ready to tackle a topic none of us want to deal with? Me either, but this is definitely a topic you cannot run away from. For if you do, you will be stuck with even more medical bills. … Read More
Hi parents! I want to share some practical tips on getting started with managing your child’s healthcare. First, leave a hospital bag in the car. This will be like an overnight bag with toiletries, medications, change of clothes for you … Read More
When your child is in the hospital, you can get burned out on caring for them, especially when it is for long periods of time. However, when you take care of yourself and get refreshed, you are a much better … Read More
The Ronald McDonald House of Greater Cincinnati has been a home away from home at times when our daughter has been in the hospital. We didn’t know about this great resource for the first 9 years our daughter was treated there, … Read More
Trying to actually sleep while in the hospital with your child? It can be a struggle to get comfortable on a fold out chair, but watch this video for a suggestion to make it better!
Welcome to Critically Loved, where we are navigating life with a chronically or critically ill child. If you’re here, your life has already taken many unexpected turns. Life is, well… just harder for you than it is for most of … Read More
If your child was recently diagnosed with a critical illness, then you are probably going through a time of grieving right now. I want to encourage you to allow yourself that time. It’s okay to withdraw from friends and family … Read More